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  1. #1

    Red face Wanita Bertubuh Elastis karena Sindrom Langka

    Adik perempuan fotografer Ilaria Di Bagio yang bernama Gioia didiagnosis mengidap penyakit langka bernama Sindrom Ehlers-Danlos. Sejak tahun 2011, Ilaria pun terinspirasi untuk mengabadikan keseharian Gioia dan bagaimana Gioia memandang tubuhnya sendiri.

    Gioia menarik hidungnya yang bisa melar melebihi orang normal. Kulitnya memang sangat rapuh dan mudah terluka. Gioia didiagnosis dengan Sindrom Ehlers-Danlos sejak usianya masih tujuh tahun. Sejak kecil sang kakak, Ilaria curiga mengapa adiknya mudah cedera tapi susah sembuh.

    Bayangan tangan Gioia yang fleksibel dan bisa ditekuk-tekuk terlihat di dinding. Sindrom Ehlers-Danlos merupakan gangguan jaringan ikat langka yang disebabkan adanya kecacatan pada proses sintesis dari protein kolagen. Gejala yang paling menonjol adalah kulit menjadi super elastis sekaligus sangat rapuh, mudah patah namun susah sembuh.

    Kekasih Gioia, Ivan tampak menggosok punggung wanita berusia 27 tahun itu. Ivan sengaja belajar memijat teknik ayurveda untuk meredakan nyeri yang dirasakan Gioia. Konon sindrom ini tak ada obatnya.

    Foto yang diambil di kolam renang ini memperlihatkan kulit kaki Gioia yang tampak elastis juga di dalam air. Ide untuk memotret keseharian Gioia ini muncul ketika Ilaria kerap menemani saudaranya untuk check-up rutin ke dokter. Tentu saja dengan persetujuan sang adik.

    Gioia tampak menarik kulitnya sendiri. Makin dewasa ia makin terbiasa dengan keadaannya. Foto-foto dalam proyek ini diambil sejak tahun 1997, namun beberapa di antaranya juga diambil dari album foto keluarga mereka.

  2. #2

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  6. #6

    Consumers Research

    As they’re animals, it’s impossible to expect them to follow your every order. it for everyone to use. How long does it take for a singer to develop a good and healthy vibrato voice is usually dependent on the singer's mind/body coordination. How does one accept the continued support and popularity of war criminals masquerading as leaders or child molesters. In your own community, it is best that you familiarize yourself in any or all of the warning signals or signs whenever a flood does occur. Chen style Tai Chi is one of the hardest and the most difficult type of Tai Chi to learn. School choice widens for those considering distance learning. have bought from you. Taxes - And Your Online Business. Approximately 200 markets are in the exchange for Scotch whisky with the European Union being in the forefront vying for top spot with the United States, Japan and other Asian markets following suit.
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